September 15, 2011 is World Lymphoma Awareness Day
Thursday, September 15, 2011 marks the 8th anniversary of World Lymphoma Awareness Day! Look for Node on your cell phones (Lymphoma 101 in 9 different languages) and in your emails to ensure that you know the signs and symptoms of lymphomas, leading to earlier diagnosis and treatment, and ultimately resulting in better patient outcomes.
This day is dedicated to raising awareness of lymphomas. Did you know there are over 45 subtypes! Launched in 2004 and now an established date in the health calendar, WLAD provides a focus for you as doctors, nurses, patient groups, patients and families and friends to join forces in a united campaign to inform the public about lymphoma, its signs and symptoms and how it affects lives of millions of people around the world. Get involved!
Why have WLAD?
Despite the fact that one million people worldwide live with lymphoma and nearly 1,000 people are diagnosed with this cancer every day, research shows:
- Lymphomas are not understood; are often misdiagnosed and often treated for the misdiagnosis The 2010 LC Nodes No Border global patient survey told us that although most people had heard of lymphoma prior to diagnosis, they knew very little about it and almost never connected their symptoms to it.
- Lack of awareness of lymphoma signs and symptoms results in late diagnosis,
- 40% of patients took over 2 months + to get diagnosed
- 11% of those took 1+ years
- 2% actually took over 4 years
- 56% of the patients went to the doctor with recognizable lymphoma signs and
- only 19% of these patients suspected lymphoma
- Cause is yet unknown. Without known causes, we cannot pre-screen or prevent lymphoma from occurring. We are just beginning to uncover the causes and risk factors through the The InterLymph Consortium, or formally the International Consortium of Investigators Working on Non-Hodgkin's Lymphoma Epidemiologic Studies, an open scientific forum for epidemiologic research in lymphomas. The consortium is a group of international investigators who have completed or have ongoing case-control studies and who discuss and undertake research projects that pool data across studies or undertake collaborative research on the causes and factors of lymphomas.
Through raised awareness of lymphoma, people around the world will better recognize the signs and symptoms, which leads to earlier diagnosis.
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For more information, visit the Lymphoma Coalition.