National Cancer Survivors Day

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Misunderstanding of Palliative Care Prevents People from Getting the Care They Need

Palliative care’s association with end of life has created an “identity problem” that means the majority of people facing a serious illness do not benefit from treat­ment of the physical and psychological symptoms that occur throughout their disease, according to an article co-authored by palliative care experts at Harvard Medical School, Massachusetts General Hospital, the American Cancer Society, and Johns Hopkins University.

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Learning to Advocate for Yourself

by Irene Goss-Werner, MSW, LICSW

Communicating your needs when you have cancer may seem straightforward, but for many people, self-advocacy can be daunting. However, once you learn some basic self-advocacy skills, you’ll find that communicating your needs to your medical team, partner, family, friends, or colleagues will allow others to be involved in your care in the ways you want them to be. By using the follow­ing purposeful, thoughtful approaches to communication, you’ll be better able to let others know what is and is not helpful, while enabling yourself to set limits and more easily express your concerns.

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Guide to Lodging Accommodations

There are several reasons why people with cancer and their families may decide to travel to receive care. For cancer survivors and their families, finding accommodations can be a challenge. Several facilities offer lodging for free or for a nominal fee. Each temporary lodging program will have its own rules and criteria to qualify for services.

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Novartis Oncology Announces Mobile Apps

Novartis Oncology has announced the launch of two new patient-oriented mobile phone apps to help patients better manage their health and allow them to more easily access and share important health information with their physician. My Net Manager is supported by six patient groups and Clinical Trial Seek is sourced from the National Institutes of Health (NIH).  

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Cancer Support Community Launches Living Healthy with Cancer

The Cancer Support Community has launched Frankly Speaking About Cancer: Living Healthy with Cancer®, an educational program intended to raise awareness about the unique physical and emotional needs of those living with cancer and to teach survivors how to develop healthy habits to meet these needs.

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CaringBridge Serves More People in More Ways with New Services

CaringBridge, a social network that keeps families and loved ones connected during any type of health event, is launching new services that will help even more people support their loved ones during times of need: the SupportPlanner and the Amplifier Hub.

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Get Support On-the-Go with My Cancer Manager

 

Do you ever wish you had a portable support network to help you manage the stress of cancer? Thanks to My Cancer ManagerSM, you can now track your stress level and connect with vital cancer information and support. This free application empowers people living with cancer to rate and track concerns over time and report progress to their health care team and others.

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Circle the Wagons

by Lynn Eib

I remember so well the first cancer support group meeting I attended. I was 36 years old and working as a reporter for a local newspaper. I had recently written a story about our community hospital’s new support group and interviewed its facilitator, Mary. Two months later when I showed up at a meeting, Mary naturally assumed I was visiting the group as a follow-up to my published article. “How sweet that you would come to our meeting,” she said with a big smile. “Actually, I was diagnosed with colon cancer last month,” I said.

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